- We're raising awareness of fibromyalgia
- Employment Booklets
We're raising awareness of fibromyalgia
Click here for some ways to get involved with the charity
Employment Booklets
Fibromyalgia can have an impact on employment. Click here to access our publications page where you can access our employm...Notice: Coronavirus Info. We continue to have issues with our contact forms, please email head.office@fmauk.org
Emily Canwood: Raising awareness of fibromyalgia
Hi, I’m Em. I’m 26, and from East Anglia and I have been living with chronic pain for more than ⅔ of my life.
I became disabled in the eyes of the government in 2018/2019 due to being diagnosed with fibromyalgia. In 2018 this was not when my journey with chronic pain began.
I remember being as young as 9 always complaining that my muscles and my knees hurt which was ruled down as growing pains. I was never the “healthiest” and I dealt with a great list of symptoms like being constantly nauseated, had poor balance/very clumsy, muscle cramping, lacking energy, just to name a few.
Research - Attitudes of healthcare professionals towards those with Fibromyalgia
Lay study title: Attitudes of healthcare professionals towards those with Fibromyalgia
Institution: Staffordshire University
About the study: This study aims to explore the attitudes of health care professionals toward those who are diagnosed with Fibromyalgia and the impact these attitudes have on patient care.
Type of opportunity: To help in the development and design in a potential research project
When will this study be recruiting? August 2021
What will participants be asked to do? Participants will be asked to share their experiences of Clinician attitudes towards them and how these attitudes impacted them and their care. After participants have shared their experiences, their experiences will help to develop statements will be used within the research. Participants will be asked to confirm the accuracy of these statements so that they may be used within the research.
Who can take part?Participants must have a diagnosis of Fibromyalgia,18+ years and English must be their first language
Who is conducting the research?Laura Scott, Trainee Clinical Psychologist
Who has reviewed the study?Yvonne Melia, Clinical Psychologist
How will the study benefit people with fibromyalgia?We are hopeful that the results of the study will help to develop improvement of patient care and start the development of training for clinicians.
Expenses: Unfortunately we are unable to pay for any expenses at this time.
What next / who to contact: If you are interested please feel free to contact Laura Scott for more information on This email address is being protected from spambots. You need JavaScript enabled to view it.
Fathers Day: The fibromyalgia impact on me as a father
A Father's Day Blog
Becoming a father has been the single most challenging, motivating, empowering and rewarding role I have ever and probably ever will have. I mention this because I am going to take you through a short timeline on my explaining of this. Around 6 years ago my life changed, I was faced with a traumatic event that had eventually led to my diagnoses of Fibromyalgia.
This diagnosis changed my life, forcing me to give up my degree, give up my sporting activities and competing, along with loosing huge bulks of my friendship groups. Throughout all of this I was lucky to have such a supportive and understanding family/ partner who has helped me through so much.
I can remember still the thoughts I had when we found out we was going to be having a baby, I could not see myself in the picture, I had so many worries about being a parent that I would not be able to do much at all.
Volunteers Week 2021: Jenny Timms
My name is Jenny Timms and I am a one of the many volunteers for FMA UK and have been for approximately two years as the regional coordinator for the Midlands.
The process of becoming a volunteer for FMA UK was the same as applying for a paid position, so I filled out an application form then went through two phone interviews with head office via phone including a chat with Des Quinn the chief executive, and though I was incredibly nervous, everyone I spoke to put me at ease as they were all exceedingly kind and friendly.
The reason I went for this volunteer position was I wanted to make a difference to others who have fibromyalgia just like myself. I had been considering it for a short while as I was feeling like I was not worth much and not contributing to the world around me and since I was unable to work a full-time job, I knew volunteering was the answer as it meant I could still use my lifetime skills the best way I thought how whilst being able to adapt the hours around my condition, and I have not regretted it once!
FMA UK Statement on NICE guideline changes
With the release of the NICE guideline on primary chronic pain we can start to examine the impact it may have on patients. It is our view that the fibromyalgia community will see this as a significant step back – both in their treatment options and their ‘legitimacy’ within the health service. Regional Coordinator for South West
We are currently recruiting a volunteer to cover our Regional Coordinator role in the South West area.
Our Regional Coordinators are our point of contact for new enquiries via email and telephone, provide support to the local Support Groups in the area, and represent FMA UK at events among other tasks.
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
Important Notice‼️ | At the end of March, our JustGiving Text service which allows you to donate using your phone will be ending. Instead, you can now take advantage of our new Text service with Donr. To make a donation, text 'FIBRO' to 70085 to donate a default £10. This costs £10 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20, by texting Fibro + the amount you wish to donate, e.g. FIBRO 5 to donate £5.
Please share to make our followers aware of our new text donation arrangement.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
