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The Adventure of a Lifetime
Have you ever wanted to trek up Angkor Wat, cycle from London to Paris, or even go Husky sledding in Lapland?
Fibromyalgia featured on BBC Morning Live
BBC Morning Live featured a good piece on fibromyalgia this morning. It featured Dr Punam speaking about the condition how it affects people, the difficulty in diagnosis and treatment options. Janette Manrara was the presenter and thought the subject was well covered. It had some additional impact as both Jannete and Dr Punam have personal expereince of the condition with their mothers suffering from the condition.
Dr Punam's reflection on the challenges that her mother expereinced many years ago as opposed to our awareness of the condition now was an important aspect. It can be found in iplayer for the next year or so at https://www.bbc.co.uk/iplayer/episode/m001q95f/morning-live-series-5-08092023 and the fibro piece starts at the 23:18 mark till the 28:46 mark.
Thanks to all that took part and helping to raise awareness especially during our awareness week.
Thank you to JManara and Dr Punam for their contribution to the programme. You can find the clip here
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Looking for information? Our booklets and documents can all be viewed online as PDF's and as text. Click here to view them online. If you would like a physical copy of our booklets, you can request a copy for free using our Resource Request form.
We don't charge for our resources, but some people choose to make a donation. This helps with covering postage and printing costs. If you would like to make a donation, you can find ways on how to make your donation here.
Guardian Article - How to move: exercising with fibromyalgia
This article from the Guardian highlights the dilemma that a lot of people with fibromyalgia have when it comes to exercise, as well as some suggestions for slow and gradual exercises which can be of benefit to general health.
"Fibromyalgia is a chronic condition that causes widespread muscle pain and tenderness. It is often accompanied by fatigue, altered sleep, cognitive disturbance and emotional distress. It usually develops in middle adulthood and affects more women than men. In Australia, fibromyalgia affects 2% to 5% of the population."
Harvard Article - CBD for chronic pain: The science doesn’t match the marketing
We have a lot of conversations about CBD and cannabis and these have increased since NICE started looking into it. The culture around it is changing as well to make it easier to talk about it in terms that accept that it may have medical benefits and we should at least be looking at this.
But there are a lot of claims and suppliers that are promising the moon when there is a lack of evidence and people are trying to take advantage of the current lack of regulation within CBD oil.
So it is positive to see articles like the one below from Harvard University that try to give a reasoned view of the current status and although it is American in its view there is a lot of information here that is relevant within the UK.
FMA UK supports the calls amongst other pain / health charities that there is a need for more research that establishes not only efficacy but safety and other drug interactions.
To read the article, click here.
Jenny Timms: How heat can impact my fibromyalgia
When it comes to seasons like many, I used to look forward to the summer months where I could enjoy the sunshine by lazy days in the garden sunbathing, gardening, daytrips at the beach enjoying an ice cream whilst the sun beat down on me or else I would track the sun by going abroad to a hot climate, that was until I developed fibromyalgia.
Today I am finding myself doing the opposite, wishing that we have a cold spell all year round, why, you must be wondering, well the reason is that those long-awaited hot days now cause me to sufferer terribly!
As the temperature rises so does my distress because my skin feels like it is blistering burning all over, I cannot even bear cloth next to my skin and trying to find a comfortable position is impossible because any areas of pressure feels raw and prickly.
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Highlights
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
