Paul Burstow letter
- Details
- Category: Benefits
- Published on Saturday, 28 January 2012 10:29
- Hits: 6434
In a recent letter in response to questions about local treatment for fibromyalgia Paul Burstow replied as the minister with responsibility for long term conditions.
He spoke about the usual argument that it is for local PCTs to decide on options available and individual treatment. He also mentioned, as previous ministers have, the initiative we created to supply all GPs with an information pamphlet about fibromyalgia.
The new information included in the letter was the reference to our medical information booklet for the health professional team and we are pleased that this has his endorsement in this way.
He is hopeful that the new proposals being put through parliament at present will mean all long term conditions will be managed more effectively.
We will be writing to Paul Burstow outlining our concerns for the future and asking for a meeting to discuss how best to ensure fibromyalgia is effectively managed.
Highlights
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
