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Collection of documents to help people with Benefits

Call for Evidence

Meeting with Prof Harrington
DWP Caxton House

There were 12 charities represented from a wide range of conditions and disabilities.  Prof Harrington came across as very supportive of the difficulties faced by claimants and prepared to argue strongly for any improvements needed.

During the first year and for his interim report changes were made from anecdotal evidence.  This was compelling as stories from all quarters were giving similar messages on the changes needed.  However for this year’s report and recommendations, robust evidence is required.


Survey on Disability Living Allowance changes

Hi, I work for disability charity Papworth Trust. We've launched a 5 minute survey http://t.co/fuhQmU on Disability Living Allowance changes. If you receive DLA or know someone who does, please take the survey and pass on the link - we want to be able to take as many responses as possible to the political decision makers! Thanks for your time, Kate

DLA changing to PIP - (Personal Independent Payment ) - Action needed

portcullis_blackThe government is proposing to replace Disability Living Allowance with Personal Independent Payments. The consultation time for this ends on February 14th. It is important that we voice our feelings as individuals by then. To help you with this process please go to the Benefits and Works website.

You do not have to be a member for this information and you will find links to several websites concerning this change, the important ones are the Governments own consultation site,  where you can read what the actual proposed changes are - and they are not good- and answer questions that the government are asking.

There is also a petition that you can sign which we would urge you to complete.

Please act on this now as getting benefit in the future could depend on your contribution now.

Sick Leave in the Workplace

We have previously featured a notice on the website asking any chronic pain sufferers who've taken sick leave from work, and any managers handling such leave, to contact Elaine if interested in being interviewed for research.

Thanks to people's interest, she has interviewed enough employees but still need more managers. It's  obviously really useful and important to try to get their views on what would help them to support employees more effectively. If you are an employer or can pass this message on to someone that is please help with this important study.

Notice is included below:

A team at the University of Bath is researching people’s views on sick leave for any chronic pain condition, such as long term back pain). We want to highlight examples of positive experiences, as well as exploring how we can improve things that both employers and employees find difficult. We want to find out what you think of Government policies, especially the new ‘fit note’, in relation to health and well being in the workplace.

  • Are you an employer who has managed employee sick leave for any chronic pain condition?
  • What do you feel about the new Government Fit Note?
  • Do you have 30 minutes’ spare for an anonymous interview?

In return, full study findings will be made available to you so you can see how different organisations manage sick leave and how employees perceive this. Managers who have been interviewed so far have found that it's been useful to think about their practice.      


DLA and AA safe for one parliament

Thanks to the enormous outcry led by various charities including FMA UK, disability living allowance and attendance allowance are safe – for the course of one parliament. You may remember our article about the threat to these benefit.

Following the publication of the National Care Service white paper in March the government now say

We have long said that we would protect everyone currently getting DLA and AA in cash terms in any reform of the social care system. We continue to believe that this is essential.


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