Articles
European Patients Forum Survey
- Details
- Category: General Information
- Published on Sunday, 26 July 2015 16:00
- Hits: 4465
The European Patients Forum are interested if a lack of integrated care for patients may be impacting of the quality of their care therefore affecting quality of life.
It states 'Fragmentation in the health and social care system is constantly identified by patients with chronic diseases as a major obstacle in the way of good quality care and quality of life. (EPF paper on chronic diseases, 2012) The result of fragmentation is that patients need to actively “fight the system” just to get the services they are entitled to'
Do you have any opinions you would like to share, if so please see this link: https://www.surveymonkey.com/r/CYYLR3L
The deadline for this survey is the 14th August 2015. ThanK you for reading
Highlights
.png)
.png)
.png)
.png)
.png)
Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
