Useful Information
Useful Information
These articles contain information that you may find useful. It could be travelling with your fibro or preparing for a Dr's appointment.
Fibromyalgia & Wellbeing Research
Last Updated on Saturday, 24 November 2012 00:29 Written by HazelAngelstar Wednesday, 14 November 2012 06:02
Recent research suggests that processes such as acceptance, mindfulness and engaging in activities related to personal values may assist in the management of chronic pain conditions. Less is known about how this might be helpful for individuals with fibromyalgia. A study is currently being conducted by Swinburne University of Technology which examines fibromyalgia severity, wellbeing and psychological flexibility (i.e. acceptance, mindfulness and values-based living).
Your participation will help to gather important information about the impact of fibromyalgia on wellbeing with the aim of enhancing treatment and health outcomes. Participation involves completing an anonymous online questionnaire which takes about 20 minutes. Further information and the questionnaire is available at http://opinio.online.swin.edu.au/s?s=12770
Petition: Improvement of services & resources for chronic pain
Written by HazelAngelstar Tuesday, 13 November 2012 10:18
The Scottish Cross Party Parliamentary Group on Chronic Pain are petititioning the Scottish Parliament to improve the services and resources for chronic pain management, including establishing a residential pain unit in Scotland.
At present, patients from Scotland are referred to the residential unit in Bath. Having a similar unit in Scotland will not only reduce costs, but will free up the beds used for patients in England & Wales.
Please can everyone use social media and their networks to encourage people to sign this petition and if you have a website perhaps create a space to publish this petition.
Calling on the Scottish Parliament to urge the Scottish Government to (a) hold a debate on the matter with a vote or voting rights (b) transfer more of the management for chronic pain into primary care (c) provide more social model care instead of medical model (d) change its policy to provide direct funding to ensure radical improvements to the service can be made including establishing a residential unit in Scotland to prevent Scottish pain patients being sent to Bath in Somerset for treatment
Pain Toolkit e_newsletter Summer 2012
Last Updated on Friday, 14 September 2012 15:41 Written by HazelAngelstar Friday, 14 September 2012 09:11
Snapshot of activities
- Pain Toolkit store is now open: Pain self-management resources to support patients and health care professionals to help with self-care www.paintoolkit.org/store
- Pain Toolkit workshops: We are delivering Pain Toolkit workshops (health practitioner and patient) through until December 2012, with more planned for 2013. Please contact Pete Moore if you would like the team to run these successful workshops for your team or workforce in 2012/2013. . Pain Toolkit workshop on 4th December 2012, Manchester has availability
- My Pain Toolkit: longer version of the Pain Toolkit, with extra tips and will be out in the autumn. Available as an iBook and hardcopy
- My Pain Toolkit for teenagers / young people: 2nd draft finished and will be available late 2012.
Survey of people diagnosed with muscoloskeletal disorder
Last Updated on Tuesday, 14 August 2012 12:50 Written by HazelAngelstar Tuesday, 14 August 2012 12:46
Survey of people diagnosed with a musculoskeletal disorder
Have you been diagnosed with a condition affecting your muscles, bones or joints (for example, arthritis or back pain)? If the answer is yes, and you are over 16 years of age, we would like to hear about your experiences in living with the condition, receiving treatment and benefits, managing your job, finding or leaving work. Your participation in this short survey will help a major European initiative, the Fit for Work Europe Coalition, make change happen for people with musculoskeletal conditions in the UK.
To access the survey please follow the link
www.theworkfoundation.com/surveys/uk/f4w.htm
We take every care to protect the confidentiality of the information you provide: your responses will be absolutely anonymous.
Chronic Pain Policy Coalitions Annual Review 2012
Last Updated on Tuesday, 14 August 2012 12:56 Written by HazelAngelstar Tuesday, 14 August 2012 12:40
Please find attached the Chronic Pain Policy Coalition’s (CPPC) Annual Review, this is a summary of the CPPC’s achievements between June 2011- June 2012. FMA UK works with CPPC to improve the quality of life of those affected by chronic pain in the UK.
Fibro Pain Map
Last Updated on Tuesday, 12 June 2012 08:33 Written by HazelAngelstar Tuesday, 12 June 2012 08:25
First, it can help you create a detailed picture of your pain---where it is, how it feels, and how much it hurts---that you can print out and share with your health care provider when you visit. Time is short during these visits. This graphic representation of your current symptoms provides a lot of important information fast, so you and your provider can move on to addressing your issues more quickly.
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