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29/09/05 - BBC Website - Group highlights painful illness

Details: Category: Media Coverage; Published on Friday, 11 April 2008 23:32; Hits: 7433

Campaigners across part of the South East are trying to help sufferers of the painful and debilitating condition, fibromyalgia. The illness saps people's energy and leaves them with intense aches and pains in their muscles, ligaments and tendons. The cause is unknown.

Highlights

How to Contact Us and get more info

Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.

FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.

FMA UK offers a range of support and information including:

National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
Complimentary information booklets for doctors and other professionals (fully referenced)
Books and videos
Website Contacts with legal specialists
Conferences
Local support group and helpline contacts

The charity is run by volunteers, most of whom have fibromyalgia.

Health Professional Pack

If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.

You can request a medical pack using this form.

Join a Support Group

You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.

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29/09/05 - BBC Website - Group highlights painful illness

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